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Moebius Syndrome |
Congenital Facial Diplegia; Mobius Syndrome |
Moebius Syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movements and facial expression. The first symptom, present at birth, is an inability to suck. Other symptoms can include: feeding, swallowing, and choking problems; excessive drooling; crossed eyes; lack of facial expression; inability to smile; eye sensitivity; motor delays; high or cleft palate; hearing problems; and speech difficulties.
GoldBamboo
Mobius syndrome (also spelled Moebius) is an extremely rare neurological di ...
Wikipedia - [full article]
From the WEST scientific·clinical |
From the EAST traditional·alternative |
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There is no specific course of treatment for Moebius syndrome. Treatment is supportive and in accordance with symptoms. Infants may require feeding tubes or special bottles to maintain sufficient nutrition. Surgery may correct crossed eyes and improve limb and jaw deformities. Physical and speech therapy often improves motor skills and coordination, and leads to better control of speaking and eating abilities. Plastic reconstructive surgery may be beneficial in some individuals. Nerve and muscle transfers to the corners of the mouth have been performed to provide limited ability to smile.
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One of the most frustrating aspects of coping with Moebius Syndrome is the surprising lack of awareness among physicians and nurses. It occurs so infrequently that many children go undiagnosed for months and sometimes years after birth. Parents and those affected spend a lot of time and emotional energy explaining and re-explaining this rare condition.
This lack of support services puts additional burdens on individuals and their families in their attempts to cope with Moebius Syndrome. Lack of awareness also plays a role in limiting research into potential treatments and cures for Moebius Syndrome.
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Moebius Syndrome Other1-2 of 2
Mobius Syndrome
... Synonym(s): Congenital Facial Diplegia What is Mobius Syndrome? Mobius syndrome, a rare genetic disorder characterized by facial paralysis, is caused by the absence or underdevelopment of the 6th and ...
Source: Cleveland Clinic
Mobius Syndrome Information Page ... Mobius syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movements and facial expression. The first symptom, present at bir...
Source: National Institute of Neurological Disorders and Stroke
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Moebius Syndrome Articles
- Mobius Syndrome Information Page
... Mobius syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movements and facial expression. The first symptom, present at bir...
Resources
- Congenital Facial Diplegia (National Institute of Neurological Disorders and Stroke)
- Infant Feeder for Facial Diplegia
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