Resources

• About the Human Genome Project (National Human Genome Research Institute)
• FDA Fights Rare Diseases: New Help for Patients without Treatments (Food and Drug Administration)
• Food and Drug Administration, Office of Orphan Products Development
• Gene Therapy for Cancer: Questions and Answers
• Genetic and Rare Diseases Information Center (Office of Rare Diseases)
• Genetic and Rare Diseases Information Center (National Human Genome Research Institute)
• Learning about Progeria (National Human Genome Research Institute)
• MEDLINE Search (National Library of Medicine) - Access to over 15 million citations to biomedical articles
• Office of Rare Diseases (Office of Rare Diseases)
• OOPD Frequently Asked Questions (Food and Drug Administration)
• Orphan Products: Hope for People with Rare Diseases (Food and Drug Administration)
• Other Sources of Rare Disease/Orphan Product Information (Food and Drug Administration)
• Rare Diseases (National Institutes of Health)
• Rare Diseases (Medline Plus)
• Rare Diseases Terms (Office of Rare Diseases)
• Terms and Definitions (Office of Rare Diseases)
• Von Hippel-Lindau Disease (National Institute of Neurological Diseases and Stroke)