Not Signed In -
Neurofibromatosis |
Multiple neurofibromatosis; NF |
Neurofibromatosis is an autosomal dominant genetic disorder. Types There are two major forms and one newly discovered form: Neurofibromatosis type I (was known as Von Recklinghausen disease after Friedrich Daniel von Recklinghausen). Incidence is 1:3000. Neurofibromatosis type II (or "MISME Syndrome"). Incidence is 1:40,000. Schwannomatosis is a rare form that is clinically and genetically distinct from types I and II. Multiple schwannomas (rather than neurofibromas) occur, and abo ...
Wikipedia - [full article]
Neurofibromatosis Clinical Trials
- Natural History Study of Plexiform Neurofibromas in Patients With Neurofibromatosis Type 1
ClinicalTrials.gov Identifier: NCT00445991 - Active, not recruiting
Neurofibromatosis Type 1 (nf1); Precancerous/Nonmalignant Condition
- Trial to Evaluate the Safety of Lovastatin in Adults With Neurofibromatosis Type I (NF1)
ClinicalTrials.gov Identifier: NCT00352599 - Recruiting
Neurofibromatosis 1
- Pirfenidone in Children and Young Adults with Neurofibromatosis type I and Progressive Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00076102 - Recruiting
Neurofibromatosis 1; Neurofibroma, Plexiform
- Pirfenidone in Treating Young Patients With Neurofibromatosis Type I and Recurrent or Progressive Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00078936 - Recruiting
neurofibromatosis 1 and 2 (NF1 and NF2)
- Quality of Friendships in Children With Neurofibromatosis
ClinicalTrials.gov Identifier: NCT00508235 - Recruiting
Neurofibromatosis
- NF1-Attention: Study of Children With Neurofibromatosis Type 1 Treated by Methylphenidate
ClinicalTrials.gov Identifier: NCT00169611 - Recruiting
Neurofibromatosis Type 1
- R115777 to Treat Children with Neurofibromatosis Type 1 and Progressive Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00021541 - Recruiting
Neurofibroma, Plexiform; Neurofibromatosis Type I
- Study of Plexiform Neurofibromas in Neurofibromatosis Type 1
ClinicalTrials.gov Identifier: NCT00006435 - Active, not recruiting
Neurofibroma, Plexiform; Neurofibromatosis Type I
- NF2 Natural History Consortium
ClinicalTrials.gov Identifier: NCT00004483 - Active, not recruiting
Schwannoma, Vestibular; Neurofibromatosis 2; Meningioma
- AZD2171 in Treating Patients With Neurofibromatosis Type 1 and Plexiform Neurofibroma and/or Neurofibroma Near the Spine
ClinicalTrials.gov Identifier: NCT00326872 - Recruiting
Neurofibromatosis Type 1 (nf1); Precancerous/Nonmalignant Condition
- Sunitinib in Treating Patients With Recurrent or Unresectable Meningioma, Intracranial Hemangiopericytoma, or Intracranial Hemangioblastoma
ClinicalTrials.gov Identifier: NCT00561665 - Recruiting
Brain and Central Nervous System Tumors; Neurofibromatosis Type 1 (nf1); Neurofibromatosis Type 2 (nf2); Precancerous/Nonmalignant Condition
- Fludeoxyglucose F 18 Positron Emission Tomography and Magnetic Resonance Perfusion Imaging in Patients With Neurofibromatosis 1 and Plexiform Neurofibroma
ClinicalTrials.gov Identifier: NCT00060008 - Recruiting
neurofibromatosis 1 and 2 (NF1 and NF2)
- Natural History and Biology of Skin Neurofibromas in Neurofibromatosis Type 1
ClinicalTrials.gov Identifier: NCT00314119 - Recruiting
Dermal Neurofibromas; Neurofibromatosis Type 1
- An Implant for Hearing Loss Due to Removal of Neurofibromatosis 2 Tumors
ClinicalTrials.gov Identifier: NCT00030043 - Completed
Neurofibromatosis 2
- Pirfenidone to Treat Children with Neurofibromatosis Type 1 and Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00050453 - No longer recruiting
Neurofibromatosis 1; Plexiform Neurofibroma
- Neurofibromatosis Type 1 (NF1) and Tibial Dysplasia
ClinicalTrials.gov Identifier: NCT00303368 - Recruiting
Neurofibromatosis Type 1; Tibial Dysplasia
- Variation in Gene Expression in Neurofibromatosis Type 1
ClinicalTrials.gov Identifier: NCT00111384 - Recruiting
- Phase II Study of the Multichannel Auditory Brain Stem Implant for Deafness Following Surgery for Neurofibromatosis 2
ClinicalTrials.gov Identifier: NCT00004437 - Completed
Neurofibromatosis 2
- Combination Chemotherapy in Treating Patients With Stage III or Stage IV Malignant Peripheral Nerve Sheath Tumors
ClinicalTrials.gov Identifier: NCT00304083 - Recruiting
Neurofibromatosis Type 1 (nf1); Sarcoma
- Combination Chemotherapy in Treating Patients With Neurofibromatosis and Progressive Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00030264 - Recruiting
childhood soft tissue sarcoma; childhood neurofibrosarcoma
- Tipifarnib in Preventing Cancer in Children With Neurofibromatosis Type 1 and Progressive Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00029354 - Recruiting
childhood neurofibrosarcoma; childhood soft tissue sarcoma
- Collecting and Storing Information From Patients With Cancer or Other Chronic Disease Who Have Undergone Neurobehavioral Assessments on Another Clinical Trial
ClinicalTrials.gov Identifier: NCT00459199 - Recruiting
Brain and Central Nervous System Tumors; Cognitive/Functional Effects; Leukemia; Long-Term Effects Secondary to Cancer Therapy in Adults; Long-Term Effects Secondary to Cancer Therapy in Children; Lymphoma; Neurofibromatosis Type 1 (nf1); Psychosocial Effects/Treatment; Unspecified Adult Solid Tumor, Protocol Specific; Unspecified Childhood Solid Tumor, Protocol Specific
- Vinblastine and Carboplatin in Treating Young Patients With Newly Diagnosed or Recurrent Low-Grade Glioma
ClinicalTrials.gov Identifier: NCT00352495 - Suspended
Brain and Central Nervous System Tumors; Neurofibromatosis Type 1 (nf1)
- Pirfenidone in Treating Young Patients With Neurofibromatosis Type 1 and Plexiform Neurofibromas
ClinicalTrials.gov Identifier: NCT00053937 - Completed
childhood neurofibrosarcoma; childhood soft tissue sarcoma
Resources
- Analysis of Mortality in Neurofibromatosis 1 Using U.S. Death Certificates (National Center for Environmental Health)
- ClinicalTrials.gov: Neurofibromatoses (National Institutes of Health)
email this page
print this page
bookmark this page
feedback on this page
