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Pseudotumor Cerebri Intracranial Hypertension
I was inspired to tell my story by <a href= http www flickr com photos rosie hardy >Rosie< a> who talks openly about her Alopecia in order to help people I hope my story will help people as well ~~~~~~~~~~~~~~~~~~~~ I have Pseudotumor Cerebri In 2006 I was diagnosed with PTC after 6 months of recurring headaches I woke up on a Saturday morning and my vision was so distorted that I could barely make myself out in the mirror I took a shower and washed my face thinking maybe it was just that I was still sleepy but it didn t help My Mom took me to the Emergency Room and I saw the doctor there and he examined my eyes and saw that I had papilledema a condition that is usually only present in those who have brain tumors I was immediately sent to CT scan and there was no tumor I had PSEUDOtumor Cerebri My brain had too much Cerebral Spinal Fluid surrounding it I had to have a series of spinal taps to drain off the excess fluid in my cranial cavity In the next few days I visited several doctors one of which was an Ophthalmologist He told me that I had multiple retinal strokes and hemorrhaging inside my eyes He told me that he did not know what the prognosis would be when and if I would ever regain my previous eyesight and that there was a possibility it could get worse It is absolutely terrifying to be told that you may lose your sight I can t even tell you how scary that was I cried so much and worried so much and prayed SO MUCH just to be able to keep my sight something that I had taken for granted every day and never took the time to be thankful for Thanks to a lot of prayer and a lot of love from my friends and family I can tell you today I have no symptoms or remnants of PTC It is in complete remission My eyes are slightly damaged but I don t require eyeglasses or anything for it You never know what lies behind a person s eyes but that is the story behind mine survival If anyone else is out there who has had this condition there i
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A friend uploaded a picture of her retina to Facebook That reminded me that I had pictures of my eyes around here some place After much digging I found this image file with a last modified date of 1996 who would have ever thunk there d come a day when one had 11 year old files on these new fangled home micro computer gadgets You can see the lovely distortion created by my optic nerve protruding a little bit into my eye Ah the fun days of Idiopathic intracranial hypertension
In Our Own Words
A short movie about the experience of intracranial hypertension
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produces the symptoms of idiopathic intracranial hypertension idiopathic means unknown cause intracranial means inside the head hypertension means the fluid is under high pressure Figure 1 The cerebrospinal fluid circulation
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Idiopathic Intracranial Hypertension Pseudotumor Cerebri Michael Wall MD Department of Ophthalmology and Visual Sciences
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venous stenosis abnormality and create a flow limiting stenosis and resultant reversal of the pressure gradient This in turn could exacerbate the elevation of the intracranial pressure Signs of Idiopathic Intraocular Hypertension I Increased intracranial pressure IIP as measured by spinal tap This can be normal sometimes since this disease is known for wide
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at the cribriform plate Failure to recognize that these are encephaloceles could be disastrous Failure to diagnose benign intracranial hypertension may result in recurrence
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For further information on IH please see information sheet Intracranial Hypertension or contact the Helpline on 0845 4507755 to speak to a specialist adviser Link Magazine The essential magazine for people with hydrocephalus and spina bifida Link is published quarterly Winter Spring Summer and Autumn and is packed with the latest news events and issues for
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hypertension 3 Grey White matter distinction This is mostly a sign of cerebral edema in association with elevated ICP View good grey white matter distinction View poor grey white matter distinction 4 Suprasellar cistern The suprasellar cistern is a fluid filled space above the sella turcica It contains the circle of
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Intracranial Hypertension Research Foundation E newsletter October 2008 Research Autofluorescence Testing and Vision Loss Visual field testing is helpful in detecting existing vision loss but it is not useful in detecting early visual dysfunction
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block the circulation of cerebrospinal fluid in the sub arachnoid space surrounding the brain and spine and may cause secondary intracranial hypertension and other serious problems A Chiari Malformation A Chiari malformation is often congenital However there is evidence that over time sustained increased intracranial pressure may cause an acquired Chiari
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in the outflow of CSF the lateral ventricles will be enlarged Similarly in acute intraventricular hemorrhage the lateral ventricles will be enlarged View dilated ventricles Shown here are bilateral dilated lateral ventricles due to acute intraventricular hemorrhage In other causes of intracranial hypertension the lateral ventricles will be
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pressure in compartments other than the lateral ventricles This is the case in generalized cerebral edema subdural hematoma epidural hematoma etc View compressed ventricles Shown here are two cuts showing subarachnoid hemorrhage The ventricles are slit like due to cerebral edema and acute hemorrhage resulting in intracranial hypertension 3
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circumferential halo the edema covers major blood vessels as they leave the optic disk grade III and vessels on the disk grade IV A subretinal hemorrhage is present at 7 o clock Figure 8 Pseudopapilledema A patient with an elevated optic nerve present since birth There is no halo no major vessel covering a small nerve with abnormal vessel branching and
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Figure 6 Grade II papilledema The halo of edema now surrounds the optic disc Figure 7 Grade IV papillededema With more severe swelling in addition to a circumferential halo the edema covers major blood vessels as they leave the optic disk grade III and
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back of the eye Figs 3 8 Sometimes double vision occurs caused by limitation of lateral eye movement Lastly neuroimaging procedures such as CT scans or MRI scanning are normal Figure 3 Normal optic nerve central pinkish disk
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Figure 3 Normal optic nerve central pinkish disk Figure 4 An optic nerve with mild swelling papilledema Note the pathologic C shaped halo of edema surrounding the optic disk Grade I papilledema
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Assistant Professor of Neurosurgery Ohio State University Columbus Ohio photo Ohio State University Shunts remain one of the few treatment options for intracranial hypertension Many people with chronic IH face the decision of whether to undergo shunt surgery
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