Rare Diseases

Pictures

11 3 rare diseases jpg

France National Plan for Rare Diseases 2005 2008 Ensuring equity in the access to diagnosis treatment and provision of care On 20 November 2004 the French Government announced the creation of a National Plan for Rare Diseases the result of a wide consultation process involving rare disease experts health

---

WORLD DAY OF THE RARE DISEASES IN EUROPE photo Barcelona LES

Concentración de representantes de asociaciones y pacientes de enfermedades raras en Barcelona el día 28 feb 2009 Haciendo llegar a la sociedad que estas enfermedades tambien deben forman parte de investigación y solucion para los problemas de los que las padecen

---

lg rare diseases jpg

---

rare diseases 3 jpg

Many of the victories in developing cures vaccines and treatment programs come only after vast investments of time money and research Treating rare diseases is even more difficult iStockphoto com Dra Schwartz Some countries require pharmaceutical companies to devote time and research to rare disease treatments

---

HowStuffWorks What are the world s rarest diseases

parents to children others occur as the result of random genetic mutations Still others are the handiwork of microscopic organisms that have evolved to thrive inside the human body iStockphoto com Raycat Some of the world s rarest diseases are genetic conditions In very rare cases a genetic condition may appear that doctors have never seen before

---

Rare jpg

23 month old with serum sickness from antibiotics Adrenal dysfunction

---

problems raredis jpg

Rare Diseases

---

10 1child choosing rd7277 jpg

are manifest in the World Health Organisation WHO Report on Priority Medicines recalls Flaminia Macchia even if it was very clear in the background paper from the Dutch EU Presidency To clarify the concept of rare diseases as a public health issue Eurordis took the initiative to create a unique document covering all aspects of rare diseases definition of the concepts

---

socialissues2 jpg

Speakers of the Social Issues Round Table at the Genetics and Rare Diseases conference Speakers at this round table included representatives of drug companies the Genetic Alliance

---

research hands jpg

INSIGHT Rare diseases need collaborative research on a European level due to the large number of them 5 000 to 7 000 pathologies their low prevalence less than one in 2 000 people in Europe and

---

London suffering from shocking rise in rare Dickensian diseases

Back to the Victorians Rare infectious diseases are on the rise in London with the Tories blaming poor investment in healthcare The rise could be a result of parents refusing the MMR jab

---

IPPOSI Rare Diseases Day at EPIC 25 February 2009

---

IPPOSI Rare Diseases Day at EPIC 25 February 2009

---

IPPOSI Rare Diseases Day at EPIC 25 February 2009

---

amélie wishes you a happy rare diseases day

Amélie is 31 and lives with Prader Willi syndrome

---

IPPOSI Rare Diseases Day at EPIC 25 February 2009

---

rare diseases info hemophiliab jpg

Hemophilia B Hemophilia B is a rare congenital disorder caused by the lack of clotting Factor IX a type of protein that works with platelets to form clots when damage to a blood vessel occurs Hemophilia

---

Questions Answers These Web pages are updated as the Genetic

Questions Answers These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available If you don t see many information resources on this page it may be because the Information Center hasn t yet received a question about this condition If you have a question please contact us we will answer your question and update this page with new resources and information If you would like to submit a question Contact GARD Questions Answers These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available If you don t see many information resources on this page it may be because the Information Center hasn t yet received a question about this condition If you have a question please contact us we will answer your question and update this page with new resources and information If you would like to submit a question Contact GARD

---

Chinchilla Diseases and Ailments by A H Kennedy Picture 01 jpg

Chinchilla Diseases and AiLments Chinchilla Diseases and Ailments is a verry rare book BY

---

Rare Disease Day

Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families It was established in 2008 because according to the European Organization for Rare Diseases EURORDIS treatment for many rare diseases is insufficient as are the social networks to support individuals with rare diseases and their families furthermore while there were already numerous days dedicated to sufferers of individual diseases such as AIDS cancer etc there had previously not been a day for representing sufferers of rare diseases <a href= http www rarediseaseday org >www rarediseaseday org< a>

---