The Ehlers-Danlos National Foundation (EDNF) was created in 1985 by Nancy Hanna Rogowski. The primary goal of EDNF is to provide emotional support and updated information to those affected by Ehlers-Danlos syndrome and to their family members. In addition, EDNF serves as a vital information link to and from the medical community. It is our desire to inspire and support research in the field of connective tissue disorders-specifically Ehlers-Danlos syndrome.

MUSCULOSKELETAL DISEASES AND DISORDERS, GENETIC DISORDERS