Recent Blog Posts

View Post: JYMANI'S STORY
21 Oct 2009 by Jymani's Story  
Jymani's Story: Jymani is 4 years old. He has been fighting a rare neurological disorder, known as Opsoclonus-Myoclonus Syndrome since he was 20 months old. He is truly my hero...... View my complete profile ...
View Blog: JYMANI'S STORY - http://evansphiffer.blogspot.com/

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View Post: Two Years
19 Nov 2009 by themacdonnells  
Next was antibody therapy to put his neurological disease (Opsoclonus Myoclonus Syndrome OMS) in remission. I sit here on the last day of his antibody therapy. The feelings are still fresh. Although Lukas made it this far, ...
View Blog: Just me and my boys - http://themacdonnells.blogspot.com/

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View Post: What is OMS (Opsoclonus Myoclonus Syndrome)?
27 Mar 2009 by Kari  
Some infants, children, and adults suddenly develop a syndrome of opsoclonus, myoclonus, ataxia and encephalopathy. "Opsoclonus" is an unusual disorder of eye movement in which both eyes dart involuntarily (dancing eyes). ...
View Blog: Love for Lex - http://loveforlex.blogspot.com/

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View Post: the 2 year anniversary of the onset of oms
1 May 2009 by The Woodman Family  
once i read the symptoms of opsoclonus myoclonus sydrome i knew right away that is what my son had. now it was up to me to convince the doctors to do a full body mri to look for a tumor. it was july 16,2007 and i refused to go to bed ...
View Blog: Makhi Woodman Fighting Opsoclonus-Myoclonus... - http://makhiwoodman.blogspot.com/

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View Post: Loyola U Senior Rescues Stardom from Syndrome
WindyCitizen.com
14 Nov 2009 ...
View Blog: http://www.windycitizen.com/all

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View Post: Insights on Chronic-Relapsing Opsoclonus-Myoclonus From a Pilot ...
2 Mar 2009 by Pranzatelli, MR, Tate, ED, Travelstead,...  
Opsoclonus-myoclonus syndrome is characterized by abnormal lymphocyte trafficking into brain. The authors hypothesized that mycophenolate mofetil, a lymphocyte proliferation inhibitor, might be therapeutic. The cerebrospinal fluid and ...
View Blog: Journal of Child Neurology current issue - http://jcn.sagepub.com/

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View Post: What's going on with Conan? « Talk about Late Night TV
10 Nov 2009 by laurenditscheit  
support opsoclonus myoclonus research- http://bit.ly/46YJKw*****1 hour ago; anyone teach for america volunteers have thoughts on the organization? #teachforamerica #nonprofit*****2 weeks ago ...
View Blog: Talk about Late Night TV - http://nighttalkshows.wordpress.com/

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View Post: netwitness announces second annual charity ride for kids to ...
17 Jun 2008 by Hersey  
... today announced its second annual “ride for kids” event to take place on june 28, 2008 to benefit children diagnosed with opsoclonus myoclonus syndrome (oms), a rare autoimmune disorder caused by a neuroblastoma, a cancerous tumor, ...
View Blog: The Virginia Biker Network - http://www.vabiker.net/

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View Post: opsoclonus myoclonus syndrome links
14 Jun 2004 by JamesKara  
opsoclonus myoclonus, an article about opsoclonus myoclonus on wikipedia (written by me!) gabriellemoss.com, gabrielle's story. omsusa.org, the national pediatric myoclonus center. an american site. ...
View Blog: James and Kara's Family Blog - http://jameskara.blogspot.com/

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