Recent Blog Posts

View Post: Saint Anselm Community Battles Batten Disease in Decathlon : Saint ...
10 Nov 2009
Through the Meelia Center for Community Service, and the dedication of a core group of student volunteers, Saint Anselm College held its first Decathlon to Battle Batten Disease. A rare and currently incurable genetic disorder, ...
View Blog: Saint Anselm College Blog - http://blogs.saintanselmcollege.net/

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View Post: MissingPatient.com Alert & ID » Batten Disease
9 Nov 2009 by admin  
“It was Mother's Day, and I was out of town, and I came home and Royer had actually received a letter that said he had Batten disease, and that was the first we had heard of it,” said Heather. “We looked it up online and see that the ...
View Blog: MissingPatient.com Alert & ID - http://missingpatient.com/dementia_blog/

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View Post: {VanHoutan Family} Plainfield, IL Natural light on Location ...
16 Nov 2009 by Valerie  
The VanHoutan's, the strongest family I have had the pleasure of meeting…2 of their 3 kids have this neurodegenerative disease called Batten Disease. You can find out how to help by going to www.noahshope.com . ...
View Blog: Valerie M Photography - http://valeriemphotography.blogspot.com/

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View Post: Jacob's appt. with retina specialist
18 Nov 2009 by geer1995  
What he saw is consistent with Batten Disease. Jacob is in the early stages of degenertaion with his eyes. I asked him what this means as far as Jacob's vision goes. He said at this point, Jacob would have a harder time seeing at night. ...
View Blog: Jacob's Prayer - http://www.jacobsprayer.org/

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View Post: Bowl-a-thon raises awareness
Staten Island South Shore ...
18 Nov 2009 by Jamie Lee   ...
View Blog: http://www.silive.com/southshore/

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View Post: Stem Cell Headlines: Wednesday, 11/18
18 Nov 2009 by Stem Cell Tracker  
StemCells (STEM) Provides Update for Human Stem Cells and Batten Disease - 11.18.09. StemCells, Inc. (NASDAQ: STEM) today provided an update on the ongoing clinical development program of its proprietary HuCNS-SC product candidate ...
View Blog: Stem Cell Tracker - http://www.stemcelltracker.com/

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View Post: Lightning Strike
As told by Kat
18 Nov 2009 by Kat   ...
View Blog: http://www.mrskatvon.com/

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View Post: New website
18 Nov 2009 by Chris Hawkins  
We hope this new site will allow for a single plac to access more information about our journey, Batten Disease and the BDSRA. Also check out the updated BDSRA website at http://www.bdsra.org/. This has been in the works for several ...
View Blog: ourboysjourney - http://ourboysjourney.blogspot.com/

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View Post: Firefly Adventures
12 Nov 2009 by Jess  
As far as I can tell (probably because Battens is rare) they haven't dealt a lot with Batten's Disease itself. But on top of the child themselves they help the families (down to the children) with information and some support. ...
View Blog: Firefly Adventures - http://www.emergingwithgrace.com/

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View Post: Auction helps local boy with Batten disease (FOX 28 South Bend)
14 Nov 2009 by IvorySauer82  
A local boy gets a lot of support from the community. Tyler Allman is suffering from a rare disease called Batten Disease. A protein deficiency eats away at brain cells. See the original post: Auction helps local boy with Batten disease ...
View Blog: disease database - http://diseasedatabase.org/

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